Tanja
"Thanks to cannabis, I can get out of bed in the morning."
Tanja cares for others. She has done so since she was a child. She cushioned her mother's manic episodes, looked after her little sister, and was a pillar of support for her family when her father died of lung cancer.
Tanja learned the hard way at 16 that she had to take care of herself when meningitis paralyzed her body for four months. She suffered severe headaches, fever, was unable to move her limbs, and experienced extreme disorientation. "I was no longer able to control my arms and legs, and I couldn't speak a single intelligible word," Tanja recounts. She was hospitalized for almost a month. Although Tanja recovered, she had to drop out of her apprenticeship because she was absent too often due to her illness.
To focus on her career, she left home and completed a new apprenticeship as a childcare specialist, intending to then begin studying social pedagogy. But she was held back once again. This time it was the increasingly severe back pain. Despite her young age, Tanja was diagnosed with osteoarthritis in her back and also with lumbospondylosis. The pain in her back radiated down her legs, to the point where she could no longer feel them. "There were mornings when I couldn't even sit up straight on the edge of the bed—let alone get out of bed."
Tanja then spent a month in rehabilitation, which did her good. Besides simple physical activities like walking, she also tried CBD drops to alleviate the pain. However, the CBD had no effect on Tanja, apart from causing severe fatigue. THC drops then brought her relief. This active ingredient still helps her today to create distance from her pain.
A confusing clinical picture with no prospect of improvement
But after a few months, Tanja developed severe headaches, vertigo, and her joints became inflamed. The pain also returned to her back. Tanja could hardly concentrate on anything other than her condition. What was wrong?
The diagnosis Tanja has been living with for the past 10 years is multifaceted: severe fibromyalgia, Lyme disease, migraines, severe ME/CFS (chronic fatigue syndrome), and trigeminal neuralgia. Her condition is so complex that the underlying causes can no longer be addressed. To avoid the worst pain, she isolates herself, as noise, sudden movements, and light trigger dizziness and pain.
If she ventures outside, she risks her body collapsing and her losing her sense of direction. This condition can last for a few hours or even several days. To prevent such a collapse, Tanja, on her doctor's advice, always carries a joint with her. At the first sign of symptoms, a few puffs of cannabis can ward off the overwhelming dizziness and numbing pain.
"Cannabis gives me quality of life"
Cannabis has several effects on Tanja: After one or two puffs of a joint, she can alleviate her morning dizziness and nausea, thus preventing vomiting. Furthermore, cannabis helps her to mobilize herself and get up in the morning using her own strength. She can then gain more energy and distance from the pain by using a bit more THC (half to a whole joint). Especially when her failing nervous system triggers severe headaches, a joint helps Tanja to clear her head.
A constant level of THC in her body allows Tanja to be on her feet for about two to four hours a day. But the more she does, the more intensely the pain returns as soon as she lies down afterward. From then on, mostly only rest helps—total isolation from light, noise, and other stimuli. Cannabis helps Tanja cushion these energy crashes and fall asleep more easily.
Like many people who use cannabis for therapy, Tanja can still vividly recall the first time she took the medication: "After the first two puffs of a joint, I felt reborn. I felt like I could move mountains." (A remarkable statement from a woman who often lacks the strength to sit up in bed in the morning.)
It took her a while to find a source of high-quality cannabis, because quality determines how well the remedy works. She accepts this inconvenience in order to overcome her many hardships.
A game of hide and seek
To get through the day, Tanja maintains a certain THC level. She only tells her closest circle about her frequent use of this medication. When she meets with distant relatives, friends, or acquaintances, she forgoes her medication. "As a cannabis patient, I still feel a certain amount of shame. Many people still see the medication as something negative and therefore view me as a lazy stoner," she explains.
But Tanja's story doesn't fit the image of a lazybones, but rather that of a fighter. Despite extreme limitations, she appears positive and caring. When asked how she manages it, she says: "I force myself to move and go outside, even if I only manage it for five minutes. I know I need that for my mental health." She enjoys this brief time in daylight to the fullest: "You learn to appreciate the little things more than when you're healthy." (Box)
Tanja is battling several illnesses at once, which makes her medical condition confusing and a cure impossible.
Lumbospondylogenic pain syndrome
In this syndrome, the pain originates in the lumbar spine and spreads to adjacent parts of the body. The syndrome encompasses various painful conditions that can be caused by degenerative changes, inflammation, injury, or tension in the muscles, ligaments, and vertebrae of the lumbar spine. Typical symptoms include back pain, stiffness, limited mobility, and occasionally, pain radiating into the legs.
Osteoarthritis
In people with osteoarthritis, the cartilage thins over time and can even wear away completely. This causes the bone ends to rub directly against each other, leading to pain, stiffness, and restricted movement. The joints may also swell and become inflamed. Osteoarthritis can occur in various joints, such as the knees, hips, hands, or spine. The exact causes of osteoarthritis are not always clear, but age, genetic predisposition, repetitive stress on the joints, injuries, or being overweight can increase the risk. Osteoarthritis is a chronic condition and cannot be cured.
Myalgic encephalomyelitis / Chronic Fatigue Syndrome (Exhaustion Syndrome)
The main symptoms are extreme fatigue and exhaustion that are not relieved by rest or sleep. Even simple activities like brushing teeth, showering, or cooking can become an ordeal. Other common symptoms include muscle and joint pain, headaches, difficulty concentrating and memory problems (brain fog), sleep disturbances, swollen lymph nodes, dizziness, and digestive issues. Currently, there is no approved treatment or cure for ME/CFS.
Fibromyalgia syndrome
Fibromyalgia is a chronic condition characterized by widespread pain throughout the body. Typically, the pain is tender to the touch; even light touch can be painful. Alongside the chronic pain, symptoms include chronic fatigue, sleep disturbances, dysregulation of the autonomic nervous system (leading, among other things, to digestive problems), muscle tension, and difficulties with concentration and memory. Fibromyalgia also frequently affects mental health, which can lead to depression.
Lyme disease
Typically, Lyme disease presents with flu-like symptoms in its early stages. In advanced stages, Lyme disease can lead to a variety of symptoms, such as joint pain and swelling, neurological problems like numbness, muscle weakness, and memory problems, as well as heart problems.
Trigeminal neuralgia
Trigeminal neuralgia manifests as severe, one-sided facial pain that begins suddenly and recurs frequently. This can significantly impair the quality of life of those affected. The cause of this pain disorder is often compression of the trigeminal nerve by a nearby blood vessel. The trigeminal nerve (also known as the 5th cranial nerve) is a nerve divided into three main branches. It carries both sensory fibers for the forehead and face, as well as motor fibers for the muscles of mastication. Trigeminal neuralgia is a pain disorder affecting the distribution of these sensory nerve fibers.