A situational analysis from the perspective of Swiss cannabis patients
As attitudes towards cannabis change worldwide, many people now feel that using it medicinally is no longer a problem. However, this is not the case in Switzerland. The requirements for legally obtaining this remedy, which has been used for millennia, are still complicated, and the legally available products are low-dose and very expensive. Current legal regulations make it virtually impossible to properly treat serious illnesses or conditions with cannabis. The costs associated with high doses are enormous. This special permit from the Federal Office of Public Health was created precisely for seriously ill individuals.
A new regulation for the dispensing of medical medications is now being introduced. It should be said that patients are primarily just relieved that something is finally changing. They have been in an impossible situation for decades and now finally deserve legitimacy.
Various interest groups, such as pharmacists, Swiss farmers, and CBD producers, are positioning themselves to profit from medicinal cannabis. Large international companies and the pharmaceutical industry also want a piece of this new market. A new multi-billion dollar market is emerging worldwide.
The Federal Office of Public Health estimates that up to 100,000 Swiss patients use cannabis for medicinal purposes despite the ban. The interest in our Association shows that a much larger target group exists. This trend is also evident in Germany. Interest in medicinal cannabis is considerably higher than expected. It is all the more regrettable, then, that Switzerland is falling behind internationally due to its slow political processes.
Who are these estimated 100,000 cannabis patients?
These people come from all age groups and social classes. They often have a long history of suffering. Many have serious diagnoses or are in severe pain. In addition to the physical and psychological challenges of coping with their sometimes complex illnesses, obtaining and financing cannabis-based medications presents them with a further hurdle. However, there are also those who use cannabis, like other herbal remedies, to alleviate their migraines, age-related or menstrual cramps, or other ailments.
For these patients, cannabis is the medication of choice. They have consciously changed their therapy or combine it with conventional medical methods and medications. They are convinced of its effectiveness and consider the side effects to be milder and more tolerable than with many other medications. Many have been self-medicating for years, possess extensive knowledge about the application and production of their medication, and in some cases, have in-depth expertise.
In recent years, patients worldwide have connected via social media and shared their experiences. In Switzerland, there are patient support groups in various cities.
What do cannabis patients need ?
Cannabis patients need affordable and controlled medications, more understanding and support from doctors, competent advice on its use, and the legitimacy to use cannabis medically.
What cannabis patients fear from new medical regulations
Currently, cannabis is legalized for medical use in many countries. These cannabis medications are often sold in pharmacies. The handling involved in getting the product from the producer to the pharmacist increases the price compared to the black market. If health insurance companies do not cover the costs, patients cannot afford the medication even with a doctor's prescription.
Furthermore, the quality of cannabis flowers, for example in Germany, is sometimes abysmal. The German Hemp Association also criticizes the fact that since the legalization of cannabis for medicinal purposes, supply shortages of cannabis flowers have become the norm. Demand was completely misjudged, and only 3 to 6 of the 32 approved varieties are available. These supply shortages are causing significant disadvantages for patients. The example of Germany shows how difficult it is to establish a functioning medical distribution system and how important it is not to be dependent on producers from other countries.
Thanks to the CBD boom of a few years ago, Switzerland has a wealth of knowledge about cultivation and an already functioning production infrastructure. This advantage should not be relinquished. CBD producers could switch to medicinal cannabis virtually overnight.
Patients are viewing the Federal Office of Public Health's (FOPH) proposed solutions with mixed feelings. There are concerns that, as in other countries, pharmaceutical companies and large international cannabis corporations will be the primary beneficiaries, turning cannabis into an expensive medication. However, countries like Spain and Belgium have adopted alternative approaches. There, patients have the option of cultivating a certain number of plants themselves or joining Medical Cannabis Social Clubs (MCSCs). With an estimated 100,000 patients, some of whom possess in-depth knowledge and have been networked for years, this would be a sensible approach for Switzerland.
What cannabis patients need until new medical regulations are in place
The affected patients urgently need unbureaucratic access to medical cannabis until new medical regulations come into effect. The current regulations are impractical. Only a few thousand have a permit from the Federal Office of Public Health (FOPH). All others are treating themselves illegally and committing a crime. MEDCAN demands immunity from prosecution for all Swiss patients.
According to the Federal Office of Public Health (FOPH), new regulations for the medical dispensing of cannabis will be open for public consultation in June 2019. It will certainly take more than two years before the situation for patients changes. Those affected have been waiting for a long time and can almost watch daily as the situation changes worldwide. They need a practical interim solution. Otherwise, patients will be forced to help themselves.
Home cultivation and permission to establish Medical Cannabis Social Clubs
Until new regulations governing the dispensing of medical cannabis are in place and the costs are covered by health insurance, those affected must be able to produce their medication as cheaply as possible. Cannabis products available from pharmacies with a prescription are far too expensive and can push patients to the brink of financial ruin. The only way for those affected to obtain affordable and clean cannabis medication is through home cultivation.
As a concrete model, the patients propose Medical Cannabis Social Clubs (MCSC).
- Any Swiss patient who is prescribed cannabis by a doctor can become a member
- The cultivation, harvesting and processing of cannabis into medicines is carried out by the Association .
- Cannabis is only distributed to members
- Each member receives the medically indicated amount for their own personal use
- Trading in cannabis or supplying it to third parties, especially minors, is illegal and will lead to exclusion
MEDCAN advocates and supports scientific monitoring of this Associationexperience for medical to gather
Patients' proposed solutions for dealing with medicinal cannabis
As can be seen in Germany, the demand for the medical use of cannabis is high. This demand will increase in the coming years. Switzerland should not limit itself to just one distribution channel. Doctors will be confronted with very different patient groups. Some already know exactly what they are doing, while others need more guidance.
On the one hand, we could envision specialized cannabis dispensaries, similar to today's CBD shops, where one can obtain medication with a doctor's prescription and proof of identity. However, this requires that the sales staff be authorized to provide information about the medical uses of cannabis. This could, of course, also be done by pharmacies. However, there is a legitimate risk that, as in Germany, costs will increase. In both cases, training for the sales staff is absolutely essential.
Since patients themselves possess a wealth of experience in the medical application of cannabis, our preferred solution is to permit home cultivation and the establishment of Medical Cannabis Social Clubs. Those affected can organize themselves into Association and cultivate and produce their own medication. This would be particularly beneficial for individuals who have been self-medicating for years. Their experiences should be scientifically documented, and we should learn from them. Failing to utilize this knowledge would be a grave mistake. Given that for many illnesses, only anecdotal evidence exists, rather than scientific studies, this is the fastest way to gain a better understanding of the medical effects of cannabis.
An important requirement for patients is that cannabis flowers are routinely tested in a laboratory for their constituents. They support the idea of a cannabis label to ensure that the raw material for medications is not contaminated with pesticides or heavy metals. This is particularly critical for sick people.
Adequate cannabis medications
In countries such as the USA, Canada, Spain, and Israel, patients are currently treated with medicinal cannabis. They have various options for administration. This is important for the user, as the method of administration also influences the effect. Swiss patients require full-spectrum cannabis extracts and cannabis flowers from different cannabis strains, which produce different effects depending on their cannabinoid composition. The medication must clearly indicate the cannabis strain and the THC/CBD ratio. Furthermore, the medication must be tested for pesticides, fungal spores, and heavy metals.
Affordable cannabis medicines
The cannabis medications that are currently legally available in Switzerland with a BAG (Federal Office of Public Health) permit are expensive. The prices are several times higher than on the black market. These exorbitant prices are incomprehensible. Patients need affordable medications that are comparable to prices in other countries. The cost of the medications must not exceed black market prices. This would only force many to continue obtaining them illegally because they cannot afford the costs. Furthermore, it must be clearly regulated when health insurance companies are obligated to cover the costs of these medications.
Training and continuing education for physicians are also crucial
Cannabis can only be used medicinally if prescribed by a doctor. However, medical school curricula still do not cover the endocannabinoid system or the medical applications of cannabis. This knowledge is essential for providing proper advice and treatment. Therefore, it remains difficult to find a healthcare professional who can support patients who wish to use cannabis for therapy. Our experience shows that doctors are aware that cannabis can be helpful for many conditions. Unfortunately, they often lack both specialized knowledge and practical experience in its medical application and consequently often approach patients with a negative attitude. Without medical support, those affected have no way to try their preferred medication. The most frequently asked question to the Association is where to find a doctor who can prescribe cannabis.
Expert advice during the sales process
It is also important that future sales staff providing advice are well-trained and able to offer competent information and consultation. The specific cannabis strain plays a crucial role, especially in medical applications. The dosage of the medication can vary significantly from patient to patient and requires some patience during the adjustment period. For severe conditions, high doses and an adjustment period are sometimes necessary. Advising patients on the use of medicinal cannabis requires considerable experience. Currently, this experience is primarily held by other patients with similar diagnoses, who exchange information in patient support groups.
Cannabis is not just a medicine for serious illnesses:
Cannabis is currently used only for serious illnesses such as multiple sclerosis, spinal cord injuries, cancer, or complex pain management. Patients often have to prove that they have exhausted all other pharmaceutical options. However, cannabis as a pain reliever demonstrates that many ailments can be alleviated before resorting to addictive opiates or other medications. Cannabinoids are not harmful to internal organs in the long term, and it is now known that they can be used for a broad therapeutic spectrum. Nevertheless, it is often argued that there are no studies that prove its effectiveness. For many conditions, there are only anecdotal reports from other affected individuals. Dr. Franjo Grotenhermen, a well-known cannabis physician in German-speaking countries, says that his patients treat 50 different conditions with cannabis. The fact that there are no studies for many conditions does not mean that cannabis cannot alleviate these symptoms. Cannabis is not a miracle cure and does not help everyone. However, when cannabis medications are effective, they can significantly improve the quality of life for those affected. Our experience as a patient association shows that the number of elderly patients who do not want to take conventional medications and treat their age-related ailments with cannabis is steadily increasing. This patient group, especially older women, would sometimes prefer to be allowed to grow their own cannabis in their gardens.